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Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

  • #CuresNow

    Take action, call your senators, and ask them to pass the OPEN ACT today and OPEN doors to HOPE! Read More
  • Help Us Make Our Goal!

    Help end our fiscal year, June 30th, on a high note! Your gift to support families will make that possible! Thank you! Read More
  • Research in Motion!

    NTSAD Annual Family Conference Research Update Session and GM-1 Meeting Now Available Read More
  • November 10, 2016

    Mark your calendar and join us at the NTSAD Annual Gala, Imagine & Believe
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  • Learn about grants, research projects, and potential therapies for Tay-Sachs, Canavan, GM1, Sandhoff and the allied diseases.
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  • Explore the support available for families coping with the diagnosis of these life-changing and often fatal genetic diseases.
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  • Join us in Orlando, Florida for a weekend of support, compassion and information.
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  • Prevention is the only cure today. Know what your genetic risks are and learn about screening.
    Be informed. Be tested.
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  • Provide a brighter future for those affected by rare genetic diseases - awareness, prevention, fundraising
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  • NY chapter folds into NTSAD and continues to raise awareness and funds to support NTSAD's mission
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  • Tay-Sachs Disease
  • Canavan Disease
  • Sandhoff Disease
  • GM-1
  • Other Allied Diseases
Tay-Sachs is a genetic disorder caused by the absence of beta-hexosaminidase (Hex-A). This missing enzyme causes cells to become damaged, resulting in progressive neurological disorders. Read More
Canavan is a progressive neurological genetic disorder caused by the absence of a vital enzyme known as aspartoacylase (ASPA). ASPA breaks N-acetylaspartate acid (NAA) into building blocks essential for building myelin. Read More
Sandhoff is a progressive neurological genetic disorder caused by the absence of a vital enzyme. It is one of over 50 genetically inherited disorders known as Lysosomal Storage Diseases. Read More
Gangliosidosis-1 (GM-1) is a progressive neurological genetic disorder caused by the absence of a vital enzyme. It is one of over 50 genetically inherited disorders known as Lysosomal Storage Diseases. Read More
The allied diseases under the NTSAD umbrella include over 50 lysosomal storage diseases and over 50 leukodystrophies. Read More

At  NTSAD, we provide family services, research, and education for Tay-Sachs, Canavan and allied diseases.
Join our cause to wipe out these genetic diseases.

National Tay-Sachs & Allied Diseases Association (NTSAD)
2001 Beacon Street, Suite 204, Boston, Massachusetts 02135
(617) 277-4463 * (800) 90-NTSAD * This email address is being protected from spambots. You need JavaScript enabled to view it.

 

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