Emma’s Fund for FamiliesMichael2023-09-15T20:19:21+00:00
Emma’s Fund for Families
Creating memories for families in honor of Emma
When we look back on our time with Emma we don’t focus on the medical equipment, the seizuresA seizure is a sudden change in behavior due to an excessive electrical activity in the brain. There are a wide variety of possible symptoms of seizures, depending on what parts of the brain are affected. Many types of seizures cause loss of consciousness with twitching or shaking of the body. However, some seizures consist of staring spells that can easily go unnoticed. Occasionally, seizures can cause temporary abnormal sensations or visual disturbances. More, the medications, or the feedings. We remember all the memories we made with her.
We were determined to give Emma as normal of a life as possible and tried to do as much with her as we could. From trips to the zoo, baseball games, days at the beach, apple picking, going to the top of the Empire State Building, and having tea at the Plaza with Eloise, we have so many things to choose from and numerous pictures to remind us of the good moments.
Emma’s Fund for Families is established to enable families to have memory making opportunities in honor of Emma. The purpose of the fund is to allow affected families to apply for grants to use towards enrichment activities. It can be used any way a family feels would be beneficial for creating their memories, such as trips to the zoo, photo shoots, tickets to an event, an overnight in a hotel with a pool, etc.
Anything that your family feels would provide a break from the routine and some fun times with your child is eligible. We hope all families have the opportunity to make amazing memories.
To apply for grant, please download and fill out the application form below.
2001 Beacon Street
Boston, MA 02135.
Thank you from the bottom of our hearts for your support!
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National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
The content of this website is intended for informational purposes only and not intended to be a substitute for professional medical advice, diagnosis, or treatment.
The National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
Get the latest news from NTSAD about our Community, the research that provides hope, and what is happening in the world of rare disease.
2001 Beacon Street, Suite 204
Boston, MA 02135
(617) 277-4463 email@example.com
National Tay-Sachs & Allied Diseases Association
2001 Beacon Street, Suite 204, Boston, MA 02135
(617) 277-4463 | firstname.lastname@example.org